{"id":17499,"date":"2026-03-29T12:24:46","date_gmt":"2026-03-29T10:24:46","guid":{"rendered":"https:\/\/mkt.hu\/?p=17499"},"modified":"2026-03-29T12:26:11","modified_gmt":"2026-03-29T10:26:11","slug":"ritka-betegsegek-egyeni-es-tarsadalmi-terhei","status":"publish","type":"post","link":"https:\/\/mkt.hu\/en\/2026\/03\/29\/ritka-betegsegek-egyeni-es-tarsadalmi-terhei\/","title":{"rendered":"Individual and Social Burdens of Rare Diseases"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Under the title <em>\u201cIndividual and Social Burdens of Rare Diseases in the Age of Innovation,\u201d<\/em> the Health and Health Economics Section of the Hungarian Economic Association (HEA) will organize a professional roundtable discussion on Tuesday, April 28, 2026, from 2:00 PM. The event will take place in the HEA community space (ELTE Faculty of Law, Building B, 1053 Budapest, Kecskem\u00e9ti Street 10\u201312, 4th floor, room 403) and will also be streamed on the HEA YouTube channel.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Speakers at the event include L\u00e1szl\u00f3 Gul\u00e1csi, university professor, Doctor of the Hungarian Academy of Sciences, and Vice-Rector for Research at \u00d3buda University; M\u00e1rta P\u00e9ntek, Doctor of the Hungarian Academy of Sciences and university professor at the Health Economics Research Centre of \u00d3buda University; \u00c1ron H\u00f6lgyesi, senior research fellow at the research centre; and G\u00e1bor Pog\u00e1ny, President of the National Alliance of Rare Diseases.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The event will be streamed live on the HEA YouTube channel at the following link: <a href=\"https:\/\/www.youtube.com\/watch?v=0ehnhi26UDY\">https:\/\/www.youtube.com\/watch?v=0ehnhi26UDY<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>In-person participation is free of charge, but due to limited seating capacity, prior registration is required. Interested participants are kindly requested to indicate their intention to attend as soon as possible by emailing <a>mkt@mkt.hu<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Under the title \u201cIndividual and Social Burdens of Rare Diseases in the Age of Innovation,\u201d the Health and Health Economics Section of the Hungarian Economic Association (HEA) will organize a professional roundtable discussion on Tuesday, April 28, 2026, from 2:00 PM. The event will take place in the HEA community space (ELTE Faculty of Law, [&hellip;]<\/p>\n","protected":false},"author":13835,"featured_media":17501,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[5],"tags":[],"class_list":["post-17499","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-korabbi-redezvenyeink"],"publishpress_future_action":{"enabled":false,"date":"2026-07-23 10:33:44","action":"category","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/posts\/17499","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/users\/13835"}],"replies":[{"embeddable":true,"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/comments?post=17499"}],"version-history":[{"count":1,"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/posts\/17499\/revisions"}],"predecessor-version":[{"id":17503,"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/posts\/17499\/revisions\/17503"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/media\/17501"}],"wp:attachment":[{"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/media?parent=17499"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/categories?post=17499"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mkt.hu\/en\/wp-json\/wp\/v2\/tags?post=17499"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}